I have to say watching this video brings up so Sometimes I shut down and don’t talk to anyone for days shirt. You getting out of the other chair to go to the other wheelchair looks exactly like me dad. He was 6’1″ and would lean his head on the nurses shoulder when we transferred and kind of shuffled his feet to walk to his wheelchair with the nurses help. Unfortunately I was not able to care for him at home and had to make that hard decision to place him in a nursing home. Breaks my heart to this day.
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Keep on keepin on, bro! The night hours do suck but keep living life on your terms and enjoying Sometimes I shut down and don’t talk to anyone for days shirt what you can. Mom and I went to see bad company/joe Walsh last night. Top pic is last night bottom is 3 years ago! Didn’t think we would make it this far but ALS can suck it! Where there is a will there is a way! Sending love from Houston
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Just last night, I was thinking to myself that Sometimes I shut down and don’t talk to anyone for days shirt I could just go to bed! But I had the entire bed process yet to go for my husband. Transfer from chair to bed,(via a Hoyer), cough assist, meds, teeth brushing, putting on a condom catheter, adjusting arms and legs just so and then he mask. Then I can get myself ready for bed and we have our time to watch TV. My husband sleeps in a hospital bed, so I don’t get to pretend that we’re normal